Autism Learning Felt, Autism Talk, Financial Aspect

The Financial Implications In Autism Care

When it comes to autism care, the one thing that is rarely talked about is the financial implication. Taking care of my daughter has been a long battle – a very expensive one. From the home modifications I did to the regular visits to our behavioral therapist, my finances are always on the low side and I have to seek help from close friends once in a while to keep up the cost. 

According to a study published in JAMA Pediatrics, a medical journal, the total lifetime cost of taking care of a person with autism in the United States is pegged at $1.4 million. If an intellectual disability is also involved that amount will be pushed up to $2.4 million.

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The total lifetime cost of taking care of a person with autism in the United States is pegged at $1.4 million.

Almost Cost Me My Career

When my daughter was diagnosed with autism, it meant that I had to give her more attention. More attention to her meant less attention to my job. It was one of the most difficult moments of my life. Thankfully I was able to find a nanny that understood a lot about autism. Her presence provided me with the break I needed for my job and career. 

Other families may not be so lucky. For them, it may mean that one of the partners will have to quit their job to focus on caregiving. The other will have to work harder to make up for the loss. 

Lack Of Policies That Consider Autism

Unfortunately, there are not many policies that relieve the stress of taking care of children with autism. Health insurance does not cover autism treatment. Health insurers consider behavioral therapy educational rather than medical so reject them outright. Parents are left with no option than to pay for the cost of these treatments from their pocket. Emotional and occupational therapy, for example, cost $150 per session and the burden falls on the parent.